End of life is a profound and inevitable part of life, and thus, human condition. It raises significant and critical questions around the meaning, purpose, fairness and quality of life, on multiple individual, inter-personal, and societal levels.
Design for end of life is an emerging area, gaining visibility and interdisciplinary interest. Current contributions around design and end-of-life are however, limited and disjointed, lacking in critical knowledge base and strategic vision. While valuable, such rush into interventional, operational, and incremental contributions, is archetypal of design’s ‘problem-solving’ approach, and would risk obscuring the broader and potentially significant theoretical, methodological, and empirical contributions between design and end of life.
The Inclusionaries Lab is pioneering a problem framing, transdisciplinary, and systemic approach to this fascinating emerging field. Coined as ‘Design Meets Death‘, we are initiating a theoretically and empirically informed discourse between the two fields of design and end-of-life in order to identify critical questions, strategic opportunities, and significant contributions. And furthermore, to interrogate and reimagine the narratives as well as the experiences in end-of-life, through inclusive and human-centred innovation.
Our recently funded research include:
- revisiting ‘legacy‘ in the context of paediatric palliative care – in collaboration with Alder Hey Specialist Palliative Care Unit (funded by Hugh Greenwood Legacy for Children’s Health Research);
- Improving Advance Care Planning (ACP) practice and experience through use of visual touchpoints – in collaboration with The Palliative Care Institute Liverpool (funded by Liverpool Clinical Commissioning Group);
- Reimagining the Hospice of The Future through the lens of human-centred design and advanced robotics – in collaboration with Marie Curie Hospice (funded by Doctoral Network in AI for Future Digital Health).